Friday, September 6, 2013

Caregiving 101

Road Trip!!
When I say road trip, it's not like a normal road trip where you just get in the car and start driving.  When you take a road trip with a quadriplegic it's a very precise thought out plan.  First you have to make sure the van is full of gas and the tires are ok.  If you broke down in this heat it would not bode well for Dennis.  Then you have to make sure the bag is packed, now this is not a normal bag, this is an essential life or death bag.  It contains the other pacemaker in case Dennis's stops working and he can't breathe.  His shoes because he has to prop his feet up since he has a pressure sore.  He meds, regular and pain.  An empty bottle (use your imagination).  Plus usually my camera for all those little moments in life you want to capture!
Now this bag can not be confused with the bag Dennis has on the back of his chair that goes everywhere with him.  It contains an ambu bag to give him breaths if his pacemaker stops.  It also has extra meds, money, kleenex, latex gloves, saline, straws, identification, every size of allen wrenchs you can imagine and gum or candy he can suck on.

He also has to have water while he is on his antibiotics.  In the van we have to have a suction machine in case something gets stuck in his throat.  We also have to have the portable ramp in case we need it to get in somewhere. 
This is all for a "road trip".  I am usually sweating and exhausted by the time I sit in the seat to drive.  But as we pull down the road it is all worth it cause it is usually just what we need. Driving and listening to the oldies ont he radio is just what the doctor ordered!
Much love, Cheri


  1. Amid the arduous preparations for these delightful road trips you periodically undertake, it is abundantly clear you never forget or overlook to pack the most important thing - your deep and abiding love for each other.
    Have a lovely weekend Cheri, and Dennis!
    Are you perhaps heading off somewhere soon??

  2. Prayers that you have a great time with no hitches. I admire your courage.

  3. Cheri, you are an awesome woman. You paint a very clear word picture of a road trip with Dennis. What it reminds me of is, "taking a 100 plus pound baby on a road trip." I can remember all of the "stuff" required to go see grandparents in another town, for the day. You had to be prepared for every "what if" that you could think of.

    God Bless you and Dennis. Love and Prayers. TJ

  4. I admire your commitment and love for your husband no matter the circumstances. God bless you both as you take some time on the road.

  5. Amazing what all you need to remember. But the best medicine for cabin fever is to get out there! have a wonderful adventure!